Description of the event

Patient and Caregiver Perspectives –
Explore New Developments in Cures, Community, Collaboration and the Care Continuum for Patients and Caregivers

Science Luminaries 
Advancements in Gene Therapy that Are Tearing Down Barriers to Discovery in Rare Disease

Regulatory and Policy Update Address –
Legislative Updates and New Initiatives within the FDA’s Orphan Drug Program

Focus on Funding –
The Impact of Disruptive Investors, Drivers of Value and Funding Models for Success

Technology Spotlight 
Artificial Intelligence (AI) and Advanced Data Analytics — Reshaping Complex Diagnostics and Decision-Making in Rare Disease Drug Development


  • 24 June, 2020
  • until
  • 26 June, 2020


The Sheraton Boston Hotel, Boston, MA

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